A Sun Prairie boy suffering from a rare and painful skin disease is undergoing breakthrough treatment in Minneapolis, in hopes of finding a new life.
One in half a million are born with epidermolysis bullosa, or EB, but the potential path to freedom from a lifetime of pain may be just across state lines.
"Alright, ready?" asked physical therapist Kate Ward, helping a patient onto a special needs bicycle. "Do you want a little help getting on?"
On a path primed for wheelies, Eleafar Xelhua-Romero's greatest trick may simply be hanging on.
"Just imagine the last time you had a burn," said Dr. Jakub Tolar with the University of Minnesota Amplatz Children's Hospital Department Of Pediatrics. "Just a small burn on your finger. It bothered you for a week, right? These kids live in a phenomenally larger pain all the time."
"Children that are born with this disease, they know on the first day of their lives because their skin peels off," said Tolar.